← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion

Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)
Comment receiving replies
@floridabonnie

I have had PMR for a year now, and am down to 3mg. of prednisone. I am tapering down at 1/2 mg per month. Does anyone else notice a heavy feeling in their legs while tapering? I don't really have pain, just a very heavy feeling in my legs when I get up to walk and move around after sitting for a while. After I get going the feeling starts to lessen, but it feels like a heavy weight on my shoulders holding me down and making my whole body seem heavy to my legs.

Jump to this post

Replies to "I have had PMR for a year now, and am down to 3mg. of prednisone. I..."
skiing | @skiing | Apr 13, 2022

A lot of the time I have the rubbery leg feeling. With a feeling of weakness. However my legs are strong enough as I still ski and golf. I am on 9.5 mg we all get different feelings and aches and pains as this inflammation moves around the body

VIEW AND REPLY
Teri | @tsc | Apr 13, 2022

Hi @floridabonnie, I am down from 40 mg of porednisone to 4 mg because of GCA, diagnosed about 11 months ago. Just this morning I noticed how heavy my legs feel - like lead weights pulling them down. It isn't constant - usually I notice it when I get up after sitting. I went for a 25 minute walk this morning and didn't experience the heaviness. I've had the feeling before though. It comes and goes.

VIEW AND REPLY