← Return to Undiagnosed: Allergy symptoms without being allergic. Ideas?

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@novakp52

I am having trouble after being referred to Mayo for a food allergy of unknown origin. The allergists has done all the test back here with no results. I have been going on 4 years of trying to find out why I can’t enjoy the foods I have been eating all my life. I don’t understand why or what triggered my Bobby to just suddenly respond with reactions any where from 30 minutes to several hours when it starts. First the nose and face starts to itch within an hour I have to start in on taking Benadryl ( can take up to 30 during this time) with no help. The nerves inside me start to react first that become very painful before the rash starts. The rash usual starts on my face going down my neck to chest before all over. It is very painful and itchy no matter what I try. Ow my breathing is being involved and I start to panic. So far y inhalers work but as of the last one, I had to ask for an epi-pen just in case.
Each time I have a reaction it keeps getting worst lasting up to 4 days. From here I become bloated and very comfortable and unable to eat anything. I just drink fluids this day. Then I get diarrhea that last most of the day. My whole body reacts to something in 99% of food.
I can’t just go any where to enjoy retirement at this time because I don’t know how to prevent these reactions. I know something I’m my body is not working/ or is working overtime against what I eat. I can’t go to a restaurant with friend and family because of how they know I react.
Something is terribl

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Replies to "I am having trouble after being referred to Mayo for a food allergy of unknown origin...."

@novakp52 I have also had a lot of food allergy issues as well which started with reactions to gluten, and after eliminating that, I found other foods that caused reactions, and I presume that the inflammation from gluten allowed other foods to enter my bloodstream that were not fully digested, so I developed intolerance or allergies to other foods. I took a lot of foods out of my diet and stopped reacting. I have noticed a recent change in that I can now tolerate foods that previously I could not like dairy. I think what a made a difference in improving my over reactive immune system was when metals were removed from my body. I had lived with old silver amalgam dental fillings, root canals, crowns and bridgework. I developed an autoimmune thyroid condition, and my environmental allergy doctor advised me that the old silver fillings maybe causing this because they out gas mercury vapor. I had also noticed that I got a sore throat about a half hour after eating and I presumed the act of chewing may be releasing mercury. If I liquified my food and swallowed without chewing, I didn't get a sore throat. I had all my silver fillings replaced with safer composites. My thyroid condition improved immediately and the antibodies attacking my thyroid dropped from being off the charts to a still present low level. When my root canals (which contain cadmium metal) failed, I made the decision to remove the teeth with the root canals, crowns and bridgework and replace all of it with Zirconium (ceramic) implants and a Zirconium bridge. After making these changes, my body was now metal free and my asthma improved a lot. I retested the levels of antibodies against my thyroid and it was borderline. A few months later, I broke my ankle, and received titanium plates and screws during ankle surgery. 6 months after that, I started getting massive hives on my arms, legs, chest, or anywhere my clothing was tight against my skin. My asthma got worse again. I had to stay on antihistamines all the time to control it. After a year of healing, I was able to have the titanium plates removed, and again my asthma improved and there were no more hives. When I tested eating some foods again like dairy, I found I was no longer reacting to it. Other foods like egg whites still bring on a huge reaction with asthma. I was really surprised that I can now enjoy foods that previously were off limits.

I think anything we can do to reduce the load on the immune system helps. I do allergy shots for the seasonal stuff like molds, pollens, dust, etc and according to my doctor treating that lowers body inflammation. I also think that the immune responses to foreign substances in my body also added to the problem. Sometimes patients have problems with surgical implants. The field of medicine that treats this would be Environmental medicine. There is a provider search at https://www.aaemonline.org/

The practice that pioneered this field of medicine can be found at https://www.ehcd.com/ and they do have information about treating reactions to surgical implants. This may be something to consider if traditional allergy testing has not yielded results.

Do you have foreign substances or metals in your body from dentistry or surgery?

Hi Novakp52,

It sounds like Mast Cell Activation Syndrome. Did you have Covid at any point? They are seeing an increase of symptoms like these that you describe after eating. I suggest seeing a rheumatologist, gastroenterologist and immunologist. Staying away from high histamine foods may help. Otherswise I would suggest taking diamine oxidase (you can buy it online) and see if it helps? Keep a food diary and maybe incorporate the help of a dietitian? I wish you well!

Is there a connection with raw carrots and soy lithium allergies?