← Return to Idiopathic Small Fiber Neuropathy Research

Discussion

Idiopathic Small Fiber Neuropathy Research

Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)

Comment receiving replies
@joannemm30809

God help us all. I feel like I'm living in a 3rd world country regarding my entire dealings with the medical field etc.

I'm so fed and very mad that SO MANY doctors brush off so many patients complaints and their symptoms or have to be pushed into doing tests that can rule in or rule out a disease etc.

I'm just furious at this point. I will be traveling to a city about two hours North of my home in SW Fl to a Long Haulers clinic. I've about given up on Mayo in Jacksonville due to Mayo only have ONE neurologist that deals with Autonomic Nervous System issues and the many negative patient reviews mostly all saying the same thing about this one neurologist AND to top of off the seven hour drive. Gas and hotel costs etc I'm about to wash my hands with all this. Sucks. Tired of complacent or passive doctors and those who will NOT listen etc

Jump to this post


Replies to "God help us all. I feel like I'm living in a 3rd world country regarding my..."

It's hard finding the best people in any field but sometimes seems harder in medicine because insurance might preclude affordable choice and network stuff and annoying things like that. But there are great doctors still practicing who listen and pat attention. I recently switched to a larger medical system and got a new, experienced, thoughtful PCP with 30 years in practice. We discussed something and, to my surprise, he messaged me through the medical portal, of something additional that occurred to him later that. I've sent 3 firemds to him who are equally impressed with his attentative-ness. I'm confident that you're persistent enough, though justifiably tired of the effort it takes, to find a doctor who works for you.

Wow! You nailed my thoughts. As a retired RN, I’m totally disgusted with healthcare today. Most providers are so concerned with following “protocol” that they ignore the patient. It’s exhausting to find someone who cares enough to listen. In my 38 year career I saw many changes and now that my husband and I are in our 70s we need a good provider but don’t know where to turn. The “system” has corrupted our healthcare with their “protocols.”