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Idiopathic Small Fiber Neuropathy Research

Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)
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@stress

You may not be missing much and further, be disappointed with the SFN ‘study.’ I had it a couple of years ago and all it did was confirm what I already knew - where the pain was and that nerves were dying for some reason. The results come after probing an area (my feet) with needles and electrodes for an hour. It was tolerable but not very comfortable and didn’t do much other than prove to the doctor what I had outlined.

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joannemm34293 | @joannemm30809 | Apr 11, 2022

God help us all. I feel like I'm living in a 3rd world country regarding my entire dealings with the medical field etc.

I'm so fed and very mad that SO MANY doctors brush off so many patients complaints and their symptoms or have to be pushed into doing tests that can rule in or rule out a disease etc.

I'm just furious at this point. I will be traveling to a city about two hours North of my home in SW Fl to a Long Haulers clinic. I've about given up on Mayo in Jacksonville due to Mayo only have ONE neurologist that deals with Autonomic Nervous System issues and the many negative patient reviews mostly all saying the same thing about this one neurologist AND to top of off the seven hour drive. Gas and hotel costs etc I'm about to wash my hands with all this. Sucks. Tired of complacent or passive doctors and those who will NOT listen etc

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