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@jay1225

I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis. Sadly it was poorly diagnosed at a clinic that oncology department didn't do a through biopsy then sent of to facility that tried to piece together a result. I still feel that a second biopsy would be more accurate but I'm going to a reputable place that doesn't do second biopsy's. They think it metastasis to my liver but no know origin OR that it started in my liver. I've gone through 4 rounds of chemotherapy with 2 more rounds scheduled. It seems to be working. After 3 sessions my liaison and tumors have shrank and my blood work liver function is now normal. After last CT they couldn't find cancer anywhere else. So to me that sounds good. My oncologist is reluctant to go into further explanation on results. If you need more about what types of NETS I have I can find out. Right now I'm open to any Mayo location.

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Replies to "I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis...."

The pathology (staging/gradung) is very important for a correct diagnosis (DX). The DX will determine the treatment plan and potentially the sequencing of therapy. It is good you are seeking a second opinion. I would visit a Mayo campus close to home, out of convenience. My wife (she is the patient) have been to Mayo Rochester 20 times over 7 years. We visited Phoenix on a trip once and may utilize Jacksonville next winter while in Florida for several months.