Connect
← Return to Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,
Discussion
Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,
Neuroendocrine Tumors (NETs) | Last Active: Jun 19, 2022 | Replies (17)Comment receiving replies
Welcome to the NETs group, @jay1225. The watch and wait approach can be unnerving. But sometimes it is a good option. I actually prefer to call it active surveillance, which sounds more action oriented. Your health and tumor is being actively watched and action will be taken when necessary.
I'm glad you're seeking a second opinion at Mayo Clinic. Which location did you request an appointment? Can you tell me a bit more about your diagnosis? What kind of NETs do you have or where? How was it diagnosed? Have you had any treatments?
Replies to "Welcome to the NETs group, @jay1225. The watch and wait approach can be unnerving. But sometimes..."
I replied to your comment in the reply section. Can contact you further
here in answers to your questions? I'm all alone in this fight and could
use any direction out there. I'm very much looking forward to my
appointment with the Mayo clinic. Hoping I'm a candidate for services they
offer.
Connect
I guess Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma, multiple liver mets. Is the official diagnosis. Sadly it was poorly diagnosed at a clinic that oncology department didn't do a through biopsy then sent of to facility that tried to piece together a result. I still feel that a second biopsy would be more accurate but I'm going to a reputable place that doesn't do second biopsy's. They think it metastasis to my liver but no know origin OR that it started in my liver. I've gone through 4 rounds of chemotherapy with 2 more rounds scheduled. It seems to be working. After 3 sessions my liaison and tumors have shrank and my blood work liver function is now normal. After last CT they couldn't find cancer anywhere else. So to me that sounds good. My oncologist is reluctant to go into further explanation on results. If you need more about what types of NETS I have I can find out. Right now I'm open to any Mayo location.