Connect
← Return to Buttock/tailbone pain, sitting or lying down - symptom of PMR?
Discussion
Buttock/tailbone pain, sitting or lying down - symptom of PMR?
Polymyalgia Rheumatica (PMR) | Last Active: Jan 17 12:34pm | Replies (64)Comment receiving replies
Two days after my onset of debilitating pain, I ordered on Amazon a toilet seat lift with handles. It is carefully boxed up and in the attic, should I ever need it again. I am a year and a half out from my Dx. I got off steroids with considerable pain last August, I rushed it due to vision issues that terrified me. My only remaining symptom is some upper arm pain and the worst on bending is the posterior upper leg pain, hips, I hear it is tendonitis. I don't know what it is but I can not sit on any hard surface or bending over at the waist w/o pain and clicking of tendon/ligaments. My doctor says it just me, but I feel it is equal pain, bilateral and it has to be a part of PMR. I agree with the other posts, I meditate/pray and really try to manage stress, because that's how all of this expressed itself in the first place.
Replies to "Two days after my onset of debilitating pain, I ordered on Amazon a toilet seat lift..."
Sorry to hear that, I was having same problems and PCP said nothing was wrong. I insisted that he was wrong and I told him I was going to get further test to prove he was wrong. He got angry with me, and I with him, but I have an appointment with him tomorrow where we will apologize I hope, and move on from here.
Sure enough my investigation led me to find out I have a very rare Nutcrackers Syndrome, A diagnosis he believed was Very unlikely, since I was menopausal, this I have to see a specialist vascular surgeon for, and I also have a very rare Ischiofemoral hip impingement syndrome in both right and left hips. I’ve had 4 injections for pain with minimal results, they are a hit and miss it seems, I’ve only got relief on tear to my labrum and my hamstring partial tear. Nerve pain worse than before injections, I am atrophied from waist down because of this and bedridden most days now,. Get a second opinion to rule out Pelvic Congested Syndrome, Men and Women can get this condition. I’m ordering my hospital supplies today for an air bed and raised toilet adapter, bedside commode, and even a bed pan. This is crippling me,
Connect
I'm not one of the experts here, but if you took yourself off of steroids, and you are in pain, you might be dealing with adrenal deficiency. That is something you need to look into. How much prednisone (?) were you on when you quit it?