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Idiopathic Small Fiber Neuropathy Research

Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)

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@callalloo

Thank you for posting about how you are navigating the shoals of a really difficult situation with, well, grace. The body-building background sounds as if it gives you extra insight into how best to help your body as well.

I had a serious back injury years back and the TENS unit was a great help. It didn't counteract the most severe pain, but it did help take my attention away from it. And helped me fall asleep, along with, for some reason, Baroque music. I could adjust the TENS unit to almost be in sync with the music by tweaking amplitude and periodicity of the TENS stimulation then lower the intensity. It sounds odd but having those three little controls was about the only control I had over pain, or pain awareness, so it was a blessing.

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Replies to "Thank you for posting about how you are navigating the shoals of a really difficult situation..."

Thanks Callalloo it does help I also had a SCS implant the paddle version which covered my entire pain areas but the paddle came loose from my spine and I needed emergency surgery to take out with Covid going on emergency surgery was 3 weeks later . After that Incident I opted out to not having that happen again as my trust went out the window to place it back in and the wait time it could have really damaged a lot more so I feel lucky it did help me some but the options just wasn’t enough for me after 10 months also my battery was rubbing my spine when I laid down left side and right side could be I had no body fat not sure I’m still in pain daily but with God , family etc I’m hanging in there and not giving up