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Anyone else experienced periodic episodes of paralysis? Covid related?
Post-COVID Recovery & COVID-19 | Last Active: May 26 12:44pm | Replies (24)Comment receiving replies
I have asked about the periodic paralysis and been dismissed. I now also have episodes of violent muscle spasms. I hope to begin bit B and glutathione injections along with hyperbaric oxygen and red light therapy next month.
Replies to "I have asked about the periodic paralysis and been dismissed. I now also have episodes of..."
Hi, I am a friend of lene87 who got interested in this problem complex when another friend got symptoms of periodic paralysis (PP) after Covid.
PP is extremely rare, it is estimated that only around 75 ppl have it in Norway, out of a population of 5 million. It is even rarer to get it as an adult, but not impossible - there are a few studies out there of how Covid can "mess up" the ion channels in your body's membranes.
I've come across a grand total of five new possible "post Covid" PP-cases in the last year, but most likely there are many more out there, either without a diagnosis, or, especially if female, with a psych diagnosis.
Short version:
"Each type of Primary periodic paralysis (PPP) can have its own pattern of symptoms. For example:
HyperKPP:
- Attacks can be shorter and less severe, but can happen more often.
- Your symptoms can come on quickly, sometimes causing you to fall.
- Between episodes, you may have muscle spasms or trouble relaxing your muscles.
HypoKPP:
- You may have attacks every day, or you may have them once a year.
- Attacks can last anywhere from an hour to a day or two.
- Some people have weakness that changes from day to day. Later on, your muscles could become permanently weak and your symptoms could get more severe."
https://www.webmd.com/brain/primary-periodic-paralysis?
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Thank you for responding!
Have you gotten to measure your potassium while the muscle symptoms are ongoing..? Or else there is no way for them to rule that out. One can get paralysis and the same symptoms for both to little and to much potassium.
How exciting! I have read a lot about glutathione, but sadly my doctors forbid me to take any supplements before we have found the underlying cause of my condition.
Please don't give ut, push the doctors, trust your gut and listen to your body! Only you know it, inside and out.
I'll have to write more another time, it is pass my bedtime here in Norway, and I'm super tired 🙂
But so 'glad' to have found this thread and possible others who may have some of the same problems! So sorry that we have to go through this, but we have to have hope that someday we will get well again!
Sending healing thoughts!
Good luck with everything, and please stay in touch! <3