← Return to Buttock/tailbone pain, sitting or lying down - symptom of PMR?

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@milld835

I was totally unable to sit on the toilet because my toilet seat was too low to get my butt and hips down to it and I had to get a riser seat. Hip pain excrutiating. Down the back of my thighs. Unable to bend over to do simple things. Fortunately it did not migrate further down, e.g. my knees, calves and feet. 20 mg of Prednisone took care of that. It's been a trip. Didn't even know what was wrong from August 2021 to Jan. 2022, when I was finally diagnosed with PMR. A lot of pain for months without knowing what it was. Now trying to wean off the Prednisone which is a whole other challenge. It will level off eventually. So sorry you're going through the hip and tailbone pain. A disease which has similarities and differences for all of us. Take care.

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Replies to "I was totally unable to sit on the toilet because my toilet seat was too low..."

Two days after my onset of debilitating pain, I ordered on Amazon a toilet seat lift with handles. It is carefully boxed up and in the attic, should I ever need it again. I am a year and a half out from my Dx. I got off steroids with considerable pain last August, I rushed it due to vision issues that terrified me. My only remaining symptom is some upper arm pain and the worst on bending is the posterior upper leg pain, hips, I hear it is tendonitis. I don't know what it is but I can not sit on any hard surface or bending over at the waist w/o pain and clicking of tendon/ligaments. My doctor says it just me, but I feel it is equal pain, bilateral and it has to be a part of PMR. I agree with the other posts, I meditate/pray and really try to manage stress, because that's how all of this expressed itself in the first place.