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How do you manage daily life with IBS-D?

Digestive Health | Last Active: Oct 30, 2022 | Replies (182)

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@chrioli

So good to hear you were finally diagnosed. I’ve had digestive issues since I was 19, I’m 67 now. I was always told it was ibs and gerd. I had years of very significant and sometimes serious symptoms like stools that were black, then orange then yellow then white and very mucousy and sometimes foul. They NEVER went beyond IBS. Now I have a lipase of 414, chronic gastritis from chronic h pylori infection, 17 precancerous polys removed., and treated twice for SIBO. I’ve never drank or smoked and have been on a very healthful but restricted diet my whole life as a result of trying to eat around triggers. I’m still very sick and loosing weight again. I’m so afraid of again being dismissed by them saying well we do know you have gerd and IBS ( though I have NEVER been actually tested for either. So frustrating.

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Replies to "So good to hear you were finally diagnosed. I’ve had digestive issues since I was 19,..."

I certainly sympathize. Similar to my experience…and I didn’t go into ALL the details but these issues really mess up your lifestyle just the same as me!
Well…if you get tested for EPI at least you will know whether it can be ruled out or confirmed. I wasn’t diagnosed until last year, and yes chronic ulcers, gastritis, just about every digestive upset you can imagine. Including the free fall weight loss. The fainting has stopped and it used to occur once a week!?. I try to consume 2000 calories a day now. The enzyme replacement therapy is really life changing. I’m up to 104 lbs now. And beyond thankful to finally KNOW what was causing all these problems.
Please don’t give up!!!
I’m here if you want to talk and am cheering you on in your journey. Don’t accept drs that will NOT listen or believe you!