← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

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@hi2l

Doctors had diagnosed me wth Raynaud's for a long time. When I was scheduled for surgery on my shoulder the pre-surgery bloodwork showed a very low platelet count. My surgery was cancelled, and I was referred to a hematologist. I had a bone marrow biopsy and was told I had ITP, MGUS and Cold Agglutinin Disease or CAD. When I'm cold CAD causes antibodies to attack red blood cells and was the reason for my blue fingers when cold. I was told it is very rare and there is no cure.

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Replies to "Doctors had diagnosed me wth Raynaud's for a long time. When I was scheduled for surgery..."

Hello @hi21. Sounds like the trip to the oncologist was well worth it. Are you being treated for these autoimmune diseases now? What is the treatment? Did you ever have the shoulder surgery?

Doesn’t seem like there is anything that I get that does have a cure