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Ocular Myotonia VS Myasthenia Gravis

Autoimmune Diseases | Last Active: Apr 10, 2022 | Replies (3)

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@nancybe

@becsbuddy yes he is seen at Yale and has a Neuro-ophthalmologist. Since I posted my question, his original Neuro, who is also an oncologist agrees with the Neuro who specializes in Neuromuscular diseases that it is in fact Myasthenia Gravis based on the SFEMG results. I will keep you posted as to any improvement as he has started steroids. It was 1 year last December for onset of symptoms and then in February both eyes were involved; and one year for IVIG this month which has plateaued with any improvements.

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Replies to "@becsbuddy yes he is seen at Yale and has a Neuro-ophthalmologist. Since I posted my question,..."

@nancybe. Thank you for responding! It sounds like you are in good hands. Here is another discussion on eyes and MG.
https://connect.mayoclinic.org/discussion/myosthenia-gravis/
Please keep me posted on your progress!