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Feeling helpless

Chronic Pain | Last Active: May 8, 2022 | Replies (27)

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@rwinney

H Chastity @sassylynn welcome to Connect, thank you for joining us. What leaves you feeling like there is no hope? Do you feel misdiagnosed? Do you feel there is more to it than doctors have presented? Do you feel like you have no pain management plan? Please fill me in on specifics so I or other members can offer help.

I'm also 52 with chronic pain. When I first came to Connect 3 years ago I was searching for answers. I went through real bad times of hopelessness and actually posted about my fear of not being able to be a good grandmother one day due to my conditions. Fear and uncertainty got the best of me. I understand where you are coming from.

I am here now to tell you that there is hope. I found it and I think you will too. Please know that positivity, as hard as it can be to find, has to be front and center in order to conquer.

I look forward to hearing back from you and for your answers to my earlier questions. Do you mind sharing more specifics so we can try to help?

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Replies to "H Chastity @sassylynn welcome to Connect, thank you for joining us. What leaves you feeling like..."

Hello, yes feel misdiagnosed.. I have had postive ANA TESTING SINCE 2015 n platelets been up since then .They keep getting higher . I get sores on my body n my mouth .. I believe it lupus ..but at the time of appointments I don’t have sign . My sister has it n fibromyalgia runs in. My family.Below I posted the sores I get . I feel as nobody listens .. even my neurologist don’t understand why the platelets so high n dr not doing nothing n my ferritin very high , overload of iron.