← Return to My 13 year old has lost her ability to lift her legs...

Discussion

My 13 year old has lost her ability to lift her legs...

Brain & Nervous System | Last Active: Jan 8, 2013 | Replies (6)
Comment receiving replies
@madsel

I'm sorry, I don't have any answers for you but I want to tell you that you are in my prayers. Keep pushing these Doctors and being a strong advocate for your daughter. You are doing just that! Even though your local Doctors are telling you nothing is wrong, you know something is wrong. God bless you and I hope that you find out really soon what is happening. Run don't walk to Mayo and find out what's happening.

Best of luck,

Laurie

Jump to this post

Replies to "I'm sorry, I don't have any answers for you but I want to tell you that..."
Transverse Myelitis Alabama | @transversemyelitisalabama | Jan 11, 2012

It does sound like Transverse Myelitis. Did they do an MRI with contrast? I have only heard of a couple of people without a spinal lesion that were thought to have TM. I think going to Mayo is a great idea or at least another Neurologist. Perferably one that specializes in MS because they know more about TM.

VIEW AND REPLY
sph6518 | @sph6518 | Jan 17, 2012

They did do an MRI with contrast. They have not done an LP. I have read that TM can be hard to diagnose without an LP. Do you know?

VIEW AND REPLY
Transverse Myelitis Alabama | @transversemyelitisalabama | Jan 17, 2012

The LP was clear when my son was diagnosed with TM. I believe that just ruled out some things but dud nor prove that he did have TM. Normally the MRI is what proves TM because of the lesions but a few Have been diagnosed without lesions.
go to http://www.myelitis.org and see if you can get her in Johns Hopkins.

VIEW AND REPLY