I live in Louisville KY and found a dietitian who did LEAP testing. I had blood work done and was tested for sensitivities to about 150 things. I’m quite sensitive to a few things, medium sensitive to others and no reaction to most. We then used this information to develop an eating plan for me. No soy, tomatoes, Tylenol, cow’s milk. Other foods I can tolerate occasionally. Some food I can eat 24/7 if I chose. My dietitian worked with me on good substitutes and how to make favorite dishes with substitutes. This has absolutely changed my life. At first it was quite difficult but now it’s usually a snap. Eating out is still a bit of a challenge, but it can be done. No more emergency runs for the bathroom. No more hesitating to accept invitation. No worrying about taking a long walk outdoors. No drugs. I don’t think the MDs are embracing this, but it has had a profound effect on my life. Good luck. I truly understand how you suffer.

So very sorry for what you have and are going through.
I was diagnosed with IBS-D for 30 +years and also ruined vacations and embarrassed myself so many times.
Last year a third gastro doc diagnosed me as having
Exocrine pancreatic insufficiency, “EPI “
They don’t really know if it gradually turned into this or if I was misdiagnosed for many years.
Some insurance companies don’t want to pay for the test and my doc had to argue with insurance. I am now treated for EPI with pancreatic enzymes and it has changed my entire life!
Please make sure to research EPI. I hope you find some answers.
It is a whole new way of living for me and I am beyond thankful!
Please feel free to ask any questions 🫶🏼