My endocrinologist has been giving me Evenity injections to treat osteoporosis. I received 8 injections (two shots, once a month). I have experienced a lot of side effects:
loss of concentration, couldn't use my logic or problem solving, memory loss, extreme fatigue, hair loss, weak vision, tingling in hands, needle tingles in feet, bone pain (of course, I kind of expected that), sores on my scalp, leg, buttocks, nails dry and splitting). I am a cancer patient since 2012, received 1 year of chemo after ovarian surgery. I still have cancer it is in remission. The chemo caused hair loss as well as memory loss. I could not remember people's names or correctly use math, or remember numbers. After taking the Evenity for 8 months, I decided to stop. It was just like being on the chemo again. I have now been off Evenity for two and half months and am feeling much better. hair loss has slowed down, and the sores are clearing up. My logic skills are coming back, and memory is better but i don't feel sharp. I have a appointment with a "new" endocrinologist tomorrow... we'll see what happens next. I too feel like I am between a rock and a hard place. I could not do the full 12 months of Evenity. My bones have become very thin -4 even though I eat healthy foods and take the calcium and D3 .... nothing is working. also, i was supposed to do more excersize and weight lifting, but just like the chemo, the evenity made me so weak and fatigued all I wanted to do was go lay down and sleep. since i have been off of it , i definitly have more energy. i will let you know how it goes.
I'm so sorry that you're dealing with this but hopefully your endocrinologist has a few ideas. Some people on these threads are taking osteoporosis meds that work off a parathyroid approach and doing well. Its hard to know exactly what to do ourselves beyond the basics of calcium-rich diet, weight-bearing exercise within our capabilities minimizing fall risk. Basically a lot of the FRAXL score might be over-estimating fall risk but we can do a lot to make ourselves safer at home at least. I hope your doctor visit goes well and he has some other approaches to try. [I was going to say maybe he can pull a whitebunny out of his hat but puns are so corny ;-).]