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@IndianaScott

Hi @tunared Thanks for reaching out on this important aspect of caregiving. I am sure others will have ideas and I will continue to think about the changes I made., but I wanted to get back to you quickly to let you know I'm thinking about this.

We, too, have a one-story house. My wife was able to be home for her entire journey, although I fully know that is not possible for all. Her last 14 months were in home hospice, which was a godsend. Here are the adjustments I made that I recall first. I removed all throw rugs. I rearranged our bedroom by pushing our bed against a wall and made room for a hospital bed, even though we didn't need it right away. Our bathroom was full of ssues I never fully resolved. Our shower was a step-in and even its tiny ledge became too big a barrier. Likewise I had to remove and replace the edge piece between our bedroom carpet and the bathroom tile because it was a tiny bit higher than either and it caught her toes, then the wheels on her chair. I added grab bars on either side of the toilet. Perhaps most importantly I bought some of those adhesive stickers for tubs and showers and put them on our bathroom floor to help with slipping, but tended to not cause tripping. I bought a supply of the cheapest washcloths I could find so when they became too stained, I could toss them. I also bought some thin towels for post-bathing so the drying cycle for them was quicker than with our old, heavy towels.

Not sure of your setup, but we have two steps from the house to the garage so I found a wheelchair ramp I could put there. My wife became quite scared when I would lower her down the stairs without it, so I was happy this helped her relax and be more open to going out to our driveway and/or garage for some fresh air.

As silly as this probably sounds, I laid in a big supply of my favorite 'cheat snack'. For me that is peanut butter filled pretzels. I found having those on hand offered me the chance to easily treat myself on those inevitable extra difficult days.

Not financial, but we also attended to the necessary legal papers. POA, medical POA, estate/wills, advance directives, and (I don't know if you have adult children or not) but included our adult children and all of my wife's specialists on her HIPPA forms so I didn't always need to be the informational hub.

I'll keep thinking!

Strength, Courage, & Peace

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Replies to "Hi @tunared Thanks for reaching out on this important aspect of caregiving. I am sure others..."

Scott
Thanks for the ideas. I'll be picking up some washcloths and towels and adding the grab bars. I'll keep the rugs on the floor for the time being (I do have anti-slip material under the rugs). We have been to the lawyer and completed all the paperwork. The snacks are a great idea because I've been drinking to much wine/liqueur when the stresses get too much.
I expect to have quite a journey in front of us, so it helps to have this site to vent/ask for help.
Dan

@IndianaScott @tunared As I read your response, I couldn't help but think of all the changes you did, and how it affects your life even to this day. My dad took care of my mother for close to 10 years in her dementia and Alzheimers states, by himself [his choice]. One thing he did was keep a journal chronicling that time. He always started each entry with the weather conditions, and pertinent stuff like date/time/where he was sitting. He was intensely private with this missive, and later destroyed it before he himself became a patient at a skilled nursing facility. But I do believe it was a helpful thing for him to do, and allowed him an escape. He also took himself on a walk each morning around their neighborhood, before waking my mother up for her breakfast.
Ginger