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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)Comment receiving replies
@trishh, Mayo Clinic has a good list of questions on their site....
"What's the most likely cause of my symptoms?
Are there other possible causes?
What tests do I need?
Is this condition temporary or long lasting?
What treatments are available, and which do you recommend?
What side effects can I expect from treatment?
Are there alternatives to the primary approach you're suggesting?
I have other health conditions. How can I best manage them together?
Do I need to restrict activities?
Are there brochures or other printed material I can take? What websites do you recommend?"
-- listed near the bottom of this page: https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067
Replies to "@trishh, Mayo Clinic has a good list of questions on their site.... "What's the most likely..."
First, if your neurologist knows little about SFN, find one that does. If you have idiopathic SFN, and nothing has helped, go,to a pain specialist to see about Dorsal Root Ganglion stimulation. Do extensive research before you go. I start my 5 day trial for DRG stimulation on 4/11/22. There is little to no hope for patients with idiopathic small fiber neuropathy. Spinal,cord stimulation may be your answer. Don’t depend on the medical industry to come out with some miracle pill or treatment. They do research with absolutely nothing to show for it except more clinical trials that lead nowhere in terms or treatment.
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@johnbishop thank you for the list. Hopefully I can get some answers to SFN. I have PN as well.
Thanks again.