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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)Comment receiving replies
I have SFN and feel its has progressed to both feet and up my legs. It hurts worse than my recent hip replacement surgery. As I work hard on my PT but and my hip as healing. Not SFN. They think mine came from undiagnosed Lyme disease.
No one knows what to do to help me and I've asked my neurologist to repeat nerve studies as its been 4 years. Wont see her until last of May.
Biopsies confirmed SFN. I didn't know how bad this stuff was ... I put ice packs on my feet to numb the pain.
May neurologist doesn't seem that familiar with SFN. Any advice on what I can ask her for help?
Thanks
Replies to "I have SFN and feel its has progressed to both feet and up my legs. It..."
Why would they think that the SFN came from undiagnosed Lyme? Have you experienced other symptoms that lead them to that conclusion?
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@trishh, Mayo Clinic has a good list of questions on their site....
"What's the most likely cause of my symptoms?
Are there other possible causes?
What tests do I need?
Is this condition temporary or long lasting?
What treatments are available, and which do you recommend?
What side effects can I expect from treatment?
Are there alternatives to the primary approach you're suggesting?
I have other health conditions. How can I best manage them together?
Do I need to restrict activities?
Are there brochures or other printed material I can take? What websites do you recommend?"
-- listed near the bottom of this page: https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067