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Sphincter of Oddi Dysfunction: What helps you?

Digestive Health | Last Active: Jun 18 1:04am | Replies (35)

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@kr88005

My daughter got really sick 11 years ago while pregnant. So they removed her gallbladder while pregnant due to 3 to 5 emergency room visits a week. Now to this day she has extreme pain in abdomen back and has problems using bathroom. I ran across the sphincter of oddi here and now more than ever I think this may be her problem. She's at the emergency room as I'm typing this. She has such bad pain and is down under 100 pounds and she's 45. She throws up acid so strong it leaves burns in and on her mouth. She's had several colonoscopies and the one down her throat. Still no answers. Is there anywhere I can take her for diagnosis? We live in New Mexico and healthcare here if you go to hospital they think you are on drugs. Her doctor even prescribed her lidocaine and malox to make GI cocktail at home. I'm scared she will die before anyone can help her. 11 years of extreme pain and vomiting she tells me often she wants to die. Help please. She can't work because she never knows when she will have an attack. They last for a day to a week and that's if she can get a emergency room doctor to help her. Today I called ambulance at 5 pm. She just called to tell me they stuck her in a wheelchair and pushed her to waiting room. I just called at 11:50pm and talked to a hospital administrator and hopefully they will do something to help with her pain

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Replies to "My daughter got really sick 11 years ago while pregnant. So they removed her gallbladder while..."

Hi @kr88005 and welcome to Connect. I am so sorry to hear about your daughter and the terrible pain and vomiting that she has been experiencing. My goodness, 11 years is an awful long time to be going through that! Have you considered taking her to Mayo Clinic? Mayo Clinic is located in Minnesota, Arizona, and Florida. I think the closest to you would be Arizona. Here is the page that has all the information. https://www.mayoclinic.org/patient-visitor-guide.

GET ON A PLANE AND GO TO MAYO CLINIC IN Rochester Minnesota.
They have a Hepatobiliary And Pancreas Clinic with the best doctors in the world.
I am thinking of going there myself.
Good Luck to you and your daughter. Saying prayers for you.