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Idiopathic Small Fiber Neuropathy Research
Neuropathy | Last Active: Jun 19 12:24pm | Replies (135)Comment receiving replies
In reply to @stress I am sorry to hear about your situation. I am also suffering from SFN for the last 5 years. and am currently experiencing rapid progression on a daily basis. Although I never drank in my life I suspect statin and antibiotic ciprofloxacin to be the culprit in my case. Although I have not been using either of them from the day I was told that these may be the causation it didn't improve my conditions. In fact I am experiencing deterioration on a daily basis.
Replies to "In reply to @stress I am sorry to hear about your situation. I am also suffering..."
I intend to ask my cardiologist if there might be an alternative to statins on the assumption that they might be largely responsible for this blinking neuropathy. Maybe there’s an analog drug with a different chemical structure? Of course there are likely risks to consider - maybe unknown. Any thoughts?
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I have SFN and feel its has progressed to both feet and up my legs. It hurts worse than my recent hip replacement surgery. As I work hard on my PT but and my hip as healing. Not SFN. They think mine came from undiagnosed Lyme disease.
No one knows what to do to help me and I've asked my neurologist to repeat nerve studies as its been 4 years. Wont see her until last of May.
Biopsies confirmed SFN. I didn't know how bad this stuff was ... I put ice packs on my feet to numb the pain.
May neurologist doesn't seem that familiar with SFN. Any advice on what I can ask her for help?
Thanks