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No, never received a diagnosis or the cause. Still have it. My Primary care Dr told me to see a Dentist, he'll look at me like I'm crazy if I tell him it started after stopping Clonazepam, he probably knows nothing about Benzodiazepines and withdrawal and tapering off this DRUG. MY RLS CAME BACK AFTE GETTING OFF THE LORAZEPAM AND CLONAZEPAM, which is why I was taking it. I have had it for 40 or more years. The worst part of RLS for me is when you are not sleeping, your body is not healing. I am enclosing the Restless Leg Syndrome Foundation, you should join, its only $35 and they are incredible. They cannot prescribe anything but they can educate you. info@rls.org. 1-512-366-9109. Im truly sorry you are going through a miserable time and I wish for you a solution. Laurine
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Thank you, Laurie. I am sorry that you have suffered from RLS for over 30 years. It is an awful and painful disease. I want to join that group. I wish there was a cure for this disease. The dopamine agonist medications that I've read about can stop working in some people and make the RLS worse. I went back to the Lyrica. It helps about 40 %. If I walk and pace most of the day then I can sleep at night. I am so proud of you getting an of the Benzos. Wow! That is a huge accomplishment. I wish I was off. I want this Clonazepam out of my body. I was hit hard with this neuropathy in my hands and feet in January and that's when the RLS came back. I had it off and on five years ago while in peri- menopause and I would sometimes get it always during the day and usually when I had pms. It would come and I'd be writhing in pain and my legs wouldn't stop moving, then I'd take a pain pill and it would go away. I had told my pain Doctor and he gave me Gabapentin and I took it for two days but I exercized my legs and the RLS went away. I have been on pain management pain medication for many years for my neck and lower back and the medication doesn't work so well so I usually get cortisone injections. I was planning on getting surgery and then the Neuropathy and RLS hit me real bad. I was also planning a Klonopin taper. I went down from 2ngs to 1ng and I cut my pills in quarters and recently went down 25% but my muscles got really tight and I could feel the anxiety and with all the pain I'm going through now my caretaker/ best friend said I should get this RLS and my heart problem under control first. Did you have anxiety when you were tapering your dose?