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@IndianaScott

Hi @snowbloom I know every patient and their disease is different, but I know my wife never wanted me to talk about her situation. It was OK when she would bring it up, but not me. I know for her she felt her disease was a burden for me, she hated me 'reminding' her of her mortality, etc. When it came to doing certain things (like rewriting our wills, POAs, etc.) I made sure I bought it up as something I wanted to do and not because of her situation. I can't remember how many times I'd begin a talk with "I read something in the newspaper today that made me think of...." and then made sure I suggested we, both, do what needed to be done.

You are right, the unpredictability is tough! I remember my wife's neuro doctor telling me "we really don't know all that much about the brain, and when it is 'broken' we know even less."

Strength, Courage, & Peace

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Replies to "Hi @snowbloom I know every patient and their disease is different, but I know my wife..."

Bill does a blog - problem is his command of the computer, while never that great, is almost non existent at this point. When I try to help him I can't figure out what he is talking about and he can't explain so gets angry that I can't help him. This morning he was confusing Microsoft Edge with his Word program - then confusing his Word program with his blog site. When I tried to explain the difference he just got really upset with me and said I didn't know what I was talking about. Which could be true as I was having a terrible time trying to figure out what he was talking about! And I don't use Word or Microsoft Edge so not that familiar with them. He blames his Dell computer. Won't believe it isn't the computer's fault. Wants me to call Dell and demand they fix it or better yet send a new computer - but to be sure I rake them over the coals. I'm not good at yelling at people, especially when they haven't done anything wrong. I keep trying to distract him. Not working today. No golf on the TV that he wants to watch.