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Diagnostic testing, precision medicine and what it means for patients Sep 27 2:23pm | By Jennifer O'Hara (@jenohara)Comment receiving replies
That's the thing. I have no symptoms. It appeared on a blood test. When I asked about it I was told it was an autoimmune disease. That's when I was sent to a rheumatologist. He wanted the blood test repeated, along with a urine specimen. Still showed the same. But with no apparent symptoms they don't know what it is - only what it is not. Where I live, we do not have a lot of choice for doctors. I am a patient at Loma Linda, which advertises itself as being wonderful. It is not, but I would have to be closer to Los Angeles to have the choice to see other doctors. Anyway I thank you for your advice.
Replies to "That's the thing. I have no symptoms. It appeared on a blood test. When I asked..."
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No wonder you are concerned. They have apparently seen some markers in your blood that indicate "some abnormality" but I would think it is most likely not a life-threatening situation or they would be pursuing a better diagnosis. Not being a doctor or hematologist, but only a medical consumer myself, I cannot imagine doing anything else.
What did they tell you about "what it is not"? If they did not tell me what their tests ruled out, I would certainly look back at the paperwork from the visit, or call and ask for an explanation.
Have you asked for a better explanation, either from your rheumatologist or primary providr?
Sue