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Bronchiectasis and staving off recurrent infections
MAC & Bronchiectasis | Last Active: Jun 24 9:20am | Replies (56)Comment receiving replies
Hi, Raney - There are two kinds of rinses I am on right now. Both come from the compounding pharmacy at Mayo Clinic. I have to pay out of pocket for both as they aren’t covered by insurance. Depending on the specific problem being addressed they last quite a while and are likely temporary prescriptions, although I don’t know yet how long.
One is budesonide in a capsule form - NOT for swallowing. You break it open and add to the sinus rinse bottle along with the saline packet, shake up the suspension and rinse as usual with the NeilMed system. It is a steroid.
The second is called cefTAZidime and is a clear liquid that has to be refrigerated. It is to treat pseudomonas aeruginosa, which has been an ongoing problem. Dr. said to tilt head way back and hold in to help get into forehead sinuses, etc. I lay on the floor to do this and it is a bit of a hassle but it has helped get rid of sinus junk that drains down the back of my throat. Doc said I may be able to just add it to the bottle rinse eventually. I do all this stuff twice a day.
I hope you find this helpful!
Annfl
Replies to "Hi, Raney - There are two kinds of rinses I am on right now. Both come..."
very helpful. thank you
Hi Ann. This is interesting!! Who prescribed these for you and I didn't know Mayo had a compounding pharmacy! I'm in Texas. Do you know if they ship? Do you live close to Mayo?
I read all of the different prescribed methods for the symptoms people have and wonder if I could benefit. My issues are similar in that I have chronic nasal drainage and sometimes post nasal drainage. I assume this is from allergies to dust etc. I cannot take otc meds for allergies. I'm too sensitive and get side effects. How do they connect the nasal drainage problem to bronchiectasis and frequent lung infections? Does a full work up by an ENT or allergist help? It seems like my pulmonologist, family doctor and infectious disease doctor don't work together as a team. I'm also now getting my Sleep disorder low oxygen addressed waiting for cpap titration. So many issues at the same time. mtyler
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Thank you. I find this veery helpful and will ask my ENT about it. I do not go to Mayo, but would like to in order to get all the problems addressed. Now it is all piece mill and a drug for one problem conflicts with a drug for a different problem.