Connect
← Return to Husband diagnosed with bladder cancer: I feel so alone
Discussion
Husband diagnosed with bladder cancer: I feel so alone
Bladder Cancer | Last Active: Dec 22, 2023 | Replies (68)Comment receiving replies
Thank you, Jim. I’m sure @ljean63 will appreciate connecting with you and @sandielegal.
Jean, I understand how the diagnosis of high grade and T1 can be confusing. High grade means that the cells tend to grow more aggressively than low grade. But they also respond well to treatments, which is good. T1 means that the cancer was detected early and before the cancer spread.
You’re doing a great job of asking questions. Keep asking them until you understand what you’re dealing with. I would focus on prognosis statistics. These are numbers that may or may not pertain to your husband’s situation.
What help have the cancer nurses offered about dealing with the incontinence? They can be very helpful.
Will your husband have treatments beyond surgery?
Replies to "Thank you, Jim. I’m sure @ljean63 will appreciate connecting with you and @sandielegal. Jean, I understand..."
I haven't been on for awhile. My husband finished his bcg treatment. We had his follow up cystoscopy last Friday. We were not even thinking that there could be bad news. There are two small tumors in his bladder that now have to be biopsied. Now I realize we didn't ask enough questions, like is this part of the original cancer , or is this a reoccurence , or does that not even matter? We're feeling a little defeated at this point.
Connect
He starts bcg on May 13th. We switched to a uro oncologist as many suggested. Thank god we did as new doc found enlarged lymph node in his back that initial doc missed . He will be going in for a scan. It can’t be removed by needle as it’s close to two major blood vessels, so it will be robotically through abdomen. He’s getting tired of it, there’s always one more thing popping up.
His incontinence is all gone for now .
Thanks everyone for the comments, I’ve been bad at responding.❤️