Thank you, Jim. I’m sure @ljean63 will appreciate connecting with you and @sandielegal.

Jean, I understand how the diagnosis of high grade and T1 can be confusing. High grade means that the cells tend to grow more aggressively than low grade. But they also respond well to treatments, which is good. T1 means that the cancer was detected early and before the cancer spread.

You’re doing a great job of asking questions. Keep asking them until you understand what you’re dealing with. I would focus on prognosis statistics. These are numbers that may or may not pertain to your husband’s situation.

What help have the cancer nurses offered about dealing with the incontinence? They can be very helpful.

Will your husband have treatments beyond surgery?

Thanks, I’m feeling better reading comments from other people. Dwelling in your own head isn’t the best thing. I appreciate you reaching out. No one addressed the incontinence. We are switching docs and the nurse navigator at the new office has already been so helpful.
My husband had large bladder tumor removed and was getting ready for treatment when urinalysis showed cancer cells again. Treatment now on hold and he is having a cystoscopy on April 7th to see if cancer is in urethra.

Would you mind sharing which doctor you had at the Mayo Clinic? Which location and how you felt about the doctors care and thoroughness.

Thanks, bonnie