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Diagnostic testing, precision medicine and what it means for patients Sep 27 2:23pm | By Jennifer O'Hara (@jenohara)Comment receiving replies
I have been diagnosed with having an autoimmune disease. Despite two appointments with a rheumatologist, and a repeat of the blood test, I have not been told what kind of disease this is. They simply do not know and do not seem worried about it. As I am the one who has it, I am the only one worried about it. Is there anything I could or should do?
Replies to "I have been diagnosed with having an autoimmune disease. Despite two appointments with a rheumatologist, and..."
me too
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There are 2 approaches here - wait for a call from the doctor, or press for an answer. My personal choice would be to call the office that ordered the tests nd ask for specific answers. If they declined to specify, or to offer a consult, I would ask for a complete copy of my records and test results. Then take them to another doctor for a consultation.
In the meantime, I would try not to worry too much - most autoimmune disorders are chronic in nature and a short delay in beginning treatment does not quickly become a crisis.
What were the symptoms that led to tests being done?
Sue