I have had PMR diagnosed since July 2021. Started on 10 mg prednsone. Helped greatly overnight. However the accumulating side effects make it untenable (to me and my oncologist...I am in remission from pancreatic cancer for 6 years now). The type II diabetes is hugely escalated. I am on 3 insulins to control the steroid rise over a 12 hour period...then my usual insulin. I am on 5 mg prednisone...by my request. I had not been able to reduce below 7.5 mg prednisone with a LOT of pain but I decided to weather it to see if I could get OFF this drug. My BP meds have doubled in this period on steroids. I am in pain all the time but hoping for ability to be totally off steroids. I saw a new rheumatologist my oncologist sent me to yesterday. My sed rat has been rising. It is now >130 on 5 mg prednisone. CRP which is often okay went up to 5.2 mg/DL (ref range 0 -1). This new rheumy said absolutely NOT okay to drop the steroids further. She said such inflammation is not tenable to let run rampant. She may change me to methyprednisalone. And, or some steroid sparing drug with it. I have been totally resistant. Went on a keto diet 3 weeks ago. to reduce inflammation and to help lessen amount of insulin required. I am on 20 g carbs a day once in a while 30 but mostly between these numbers. I do NOT feel well at all. Apparently, I am usual. I have light chain disease (MGUS) a monoclonal gammopathy but multiple myeloma has been ruled out. I have lost 4 lbs in 3 weeks on the keto. Also using the diet for cancer prevention as I almost died of metastatic pancreatic cancer. Okay, I am looking for what in the world could cause the sed rate to go up to >130! They didn't give a number...maybe the scale was exceded and only goes that high. Thanks for whater thoughts anyone has.

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