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How did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 26 4:21pm | Replies (187)Comment receiving replies
@mild835 so sorry to hear about your latest taper struggle. I have been following your progress and find your story so incredible living with PMR for about a year (if I recall correctly) before you were treated, limited doctors, etc. I think, from what i've read in this group, we are not supposed to go more than a 10% decline. But not sure how accurate that is.
Replies to "@mild835 so sorry to hear about your latest taper struggle. I have been following your progress..."
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Yes, I'm a little disappointed as well, but back up to 15 mg. Will try again in a few weeks, but with 1 mg. only. I lived with it from Aug. 2021 (unknowingly) until Jan. 2022 and probably began in May 2021 with my first COVID-19 vax. That's when the neck pain reared it's ugly head, but I knew not of PMR at that time. Definitely a learning experience. Ugh. Went for a true walkabout today (not in a store) and it felt good to just do it. I was unable to walk much from end of Feb. to last week of March. My foot slipped off of a chair (being stupid trying to fix my shower curtain) and I scraped the skin on my left shin back about 3 inches almost to the bone. Developed cellulitis in it. Prescribed anti-biotics which worked. Had to knock off of them a day early because of the diarrhea. Had to keep it elevated. Took a long time to heal and the skin is still tender. There's not much skin there to start with. LOL. Thanks for following my story. We all have one, but it's an individual journey. Cheers ~ Deb