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@milld835

It is a struggle bus. I did ok with going from 20 to 15. So after a month of being on 15 I tried to take it down to 12.5. Big mistake. Pain has returned, although not as bad as it was. Decided after a week of being on 12.5 to go back up to 15. Now waiting for neurologist to call me. No bloods done since January, so figure I'm due. Also don't want inflammation to build up. My family doc retired in December. So I'm kind of winging it here. Side effects have increased in that short a time. I totally sympathize, Try to stay positive and yes this is the greatest blog ever. I knew nothing and at least now I know a couple of things. Our colleagues here are all extremely helpful and caring. All the best with your weaning process, which I feel is completely different for everyone.

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Replies to "It is a struggle bus. I did ok with going from 20 to 15. So after..."

Thanks so much for sharing your experience! It is hard to know how to proceed.

@mild835 so sorry to hear about your latest taper struggle. I have been following your progress and find your story so incredible living with PMR for about a year (if I recall correctly) before you were treated, limited doctors, etc. I think, from what i've read in this group, we are not supposed to go more than a 10% decline. But not sure how accurate that is.