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Husband diagnosed with bladder cancer: I feel so alone
Bladder Cancer | Last Active: Dec 22, 2023 | Replies (68)Comment receiving replies
I will tell you what my doctors told me “Do Not look On the Internet”! My Bladder cancer T2 was Small Cell (Very rare) Survival length very low….. Seven years later I am cancer free. Amazing things are happening in medicine everyday!
I am always available if you need to chat…..
Replies to "I will tell you what my doctors told me “Do Not look On the Internet”! My..."
HI, Sandie! I was just diagnosed with a Papillary Carcinoma with micropapillary features - also a rare version of bladder cancer. It's a club I never thought I'd belong to, yet here I am. Can you talk a bit in general about dealing with rare forms of BC?
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The new doctor’s nurse navigator was the only one who was honest about his diagnosis. It is a cancer that has to be followed closely . The first doctor told us nothing .
Being told it’s non life threatening and then seeing it’s high grade T1 is a little confusing. I didn’t realize that some patients lose their bladder. That’s a big deal. Also, no one told us that incontinence would be a thing . It’s not constant , but my husband is a contractor and had two incidents in the last couple of weeks. I feel like we have been told nothing.
Thanks so much for the positive words.❤️