In my case I came up with the PMR diagnosis through extensive internet research. I went through one disease after another and when I read the description of PMR I said "Bingo". In order not to offend the doctor (who had diagnosed me with something else) I didn't tell her what I had, just presented my relevant symptoms. She immediately said, "You have PMR". Unfortunately, I expect to have to do this for any medical problem I develop for the rest of my life. If I lose enough brain power that I can't do the research I'm sunk. Doctors don't have enough time for complex problems and are too distracted by the overload of information on their computers.