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How did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 26 4:21pm | Replies (187)Comment receiving replies
I’ve been struggling with tapering since January. I was doing well at 15mg but had a small amount of pain so my dr suggested going to 20mg. This worked but my side effects increased. Then after 2 weeks he said I should go back down to 15mg. What a mistake! I’ve bee struggling up and down from 15-18 mg ever since. I’m trying to taper now from 17 to 16 every other day for a week and then 16. My labs show a slight increase in inflammation so I have my doubts this will work. I get labs done every 2 weeks. . I have prescriptions for 1mg and 5mg. This blog has been so helpful in helping understand how to navigate PMR !!!
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It is a struggle bus. I did ok with going from 20 to 15. So after a month of being on 15 I tried to take it down to 12.5. Big mistake. Pain has returned, although not as bad as it was. Decided after a week of being on 12.5 to go back up to 15. Now waiting for neurologist to call me. No bloods done since January, so figure I'm due. Also don't want inflammation to build up. My family doc retired in December. So I'm kind of winging it here. Side effects have increased in that short a time. I totally sympathize, Try to stay positive and yes this is the greatest blog ever. I knew nothing and at least now I know a couple of things. Our colleagues here are all extremely helpful and caring. All the best with your weaning process, which I feel is completely different for everyone.