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Spouse's Recent Diagnosis of Fronto-Temporal Dementia

Caregivers: Dementia | Last Active: Apr 27, 2022 | Replies (9)
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@janet7

Thank you for all your advice and information. Right now, I am drowning
with all the issues with his Dementia and now his heart failure. His
neurologist did send me lots of info for support groups and right now I am
overwhelmed with everything so I need to get my bearings and get myself
ready to go forward. For me to do this, I need to get organized and set up
files for each category: Dementia and Heart Failure. Then spend some quiet
time with meditation and prayers. I don’t have a lot of time so I need to
start right away. I don’t have much time to devote to any support groups
right now. Just seeing the emails supporting me is all I can do and hope
you understand.
You mentioned a PET scan and a geriatric psychologist? I haven’t heard
about either one. Are these the tests and counseling he needs to have?

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Replies to "Thank you for all your advice and information. Right now, I am drowning with all the..."
Scott, Volunteer Mentor | @IndianaScott | Mar 30, 2022

Hi, @janet7 YEP! Caregiving certainly is overwhelming! I always felt like I was being forced to juggle ten flaming swords all at the same time -- while I have never been able to juggle at all!

I'll have to defer to @snowbloom regarding the PET scan and geriatric psychiatrist since she mentioned them in her post. In my wife's case she only did MRIs and had only her primary care doc and her neuro-oncologist doc as her long-term team. Along the line she did have several specialists, but they came and went as needed. Then added a whole additional layer once she was in home hospice..

Strength, Courage, & Peace

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