← Return to Dismissing doctors: How do you find a doctor who can help?

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@rwinney

Hello, @mahenoor108, I'm Rachel, it's nice to meet you. I'm thankful that Chris @artscaping brought your post to my attention. She is certainly right, you mirror a very similar journey to mine. Reading your posts make me sad because I understand your confusion, frustration and anguish, and am sorry you are dealing with it all, especially having a small child.

Being faced with the fear of not knowing why our bodies act out with symptoms that we cant explain, exacerbates more symptoms, so on and so forth. You are a perfect example of how this cyclone happens and affects your entire life, it's called the cycle of pain. My cycle of pain was caused by Central Sensitization Syndrome (CSS) which is an upregulation of the central nervous system and peripheral sensory input. This video will explain more:


Will you please let me know if this video resonates with your journey? Does any of it make sense to you and your situation?

Why do you think your doctors won't test you for everything possible? What reason have they given you for not pursuing more testing? Have you had full blood panels drawn? Do you exhibit signs of any autoimmune diseases that match up to your widespread symptoms?

I went down this same path and believe me, I wanted answers, I wanted to find cause for all of my snowballing symptoms, make sense of it and fix it, but that took time. What are your next steps in being your own advocate? Do you have a support system?

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Replies to "Hello, @mahenoor108, I'm Rachel, it's nice to meet you. I'm thankful that Chris @artscaping brought your..."

I watched the video and it resonated with me. Can I ask - do all 3 Mayo campuses offer this therapy and how do you find a program or doctor who specializes in this?