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@kmeikle1

Oh my gosh what a difficult time. I don't know where to begin. First off, you shouldn't drop by more than 10% when you're below 10mgs. And below 5 you must be very careful and give your adrenals a chance to wake up. You should be safe to increase by 5 mgs. for a week to ten days and then drop to where you were last comfortable and wait there until you stabilize. Slow and easy does it.

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Replies to "Oh my gosh what a difficult time. I don't know where to begin. First off, you..."

I’m just going to hop in here because I’m having a horrible time and I don’t know really what the cause is. I don’t have PMR. I’ve been put on Prednisone for multiple other things, asthma flares, chronic sinusitis, bronchitis, always given bursts with each time being more difficult to come off of over this past year. Then the last time in November was so severe I felt like I belonged in the hospital. I was weaned from 5 to 2.5 over a 14 day period then told to stop for 2 days and have an AM fasting cortisol level and ACTH level drawn and if they were “normal” I could stay off of the prednisone. They came back normal but by the 4th day of no prednisone I was so miserable I went back to the 5mg and called the endocrinologist. She said to stay on the 5 for a few days then start a tapper of 1 mg per month so yesterday was the first day of the 4 milligrams. Today I am totally miserable after the second day at the dose of 4 mg, I feel like I haven’t had any prednisone. I noticed the bottle said a different manufacturer so I called the pharmacist and asked could I get the 1 mg pills from the same manufacturer as I had the 5 mg from and found out they don’t make 1 mg tabs. So she said she’ll replace the ones I have now for the only other manufacturer they have available so I said okay and I’m supposed to try those tomorrow. Has anyone else experienced a problem when changing manufacturers? I have no idea if that’s my problem or if it’s the 1 mg drop. Now I’m concerned about trying yet a third manufacturer in a 4 day period. I don’t know whether to take another 1 mg pill of this and see if that helps or ride it out and try the new pills tomorrow morning from the other manufacturer, or go back to my original 5 mg pills I already had that worked for me. The problem if I do that then is I can’t wean slowly since 5 mg is the lowest they make and the dropping from 5 mg to 2.5 definitely did not work. Anyone have any suggestions? Thanks!