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How did you cope with the side effects tapering off prednisone?

Polymyalgia Rheumatica (PMR) | Last Active: Feb 19 1:42pm | Replies (179)
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@sashakay

Oh Deb what a journey this is. It is so difficult to find a balance as our body does not always follow conventional protocols for weaning. I’m sorry I don’t remember her name but a very informed member of this group said “ your body determines you’re weaning process“
(She used better words than I just did!) even at 5 mg when I dropped very conservatively and managed to get down to 3 mg over four months, my body Gave me a reality check and Wham ! I thought my whole life was falling apart. I will be honest and admit that my ego gets in the way and overrides the messages my body gives me sometimes. I recognize that prednisone is not kind to our bodies but there is a point where quality of life comes out on top. Please let us know how you are doing 💞

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Replies to "Oh Deb what a journey this is. It is so difficult to find a balance as..."
milld835 | @milld835 | Mar 29, 2022

Yes ego is an issue, because we think we should be doing more or doing better. I have decided to re-start the second weaning in a couple of weeks (so it's back up to 15 mg. for awhile).
15 mg. to 12.5 mg. may have been too much at once. So I will try going down by .5 next time. My pills are 5 mg. so cutting them in half was easy. Cutting them in quarters may be tricky. LOL. I think the lesser and slower, the better at this point.
You're right - the body knows best. Thanks so much and take care.

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