@ljean63 You are probably right about the docs not telling you everything. That is almost always true. But on the other hand, you have some opportunities to make things better. 1. Get familiar with NorthShore.com, a source for pads and wipes for folks with urinary tract problems; leakage, etc. 2. Make every day count with something good for both you and your husband. 3. Build a life pattern that can and will go on if and when he passes. Got to church, write a book, go back to school, etc. Go to various webinar sites such as Mayo, etc, and learn all you can so you will have some idea what is happening. Neither you nor your doc knows everything, so get busy learning. DO NOT TRY TO IGNORE THE CANCER! You have a chance to become much closer to each other in this experience, so do not waste the opportunity. You can do very little to change his cancer, but you can support his emotional and other needs. Last, get a second opinion, including a Full Genome sequencing or other tool to be more certain of the dX. I have about a list from Sequencing.com of about 5,000 hits on my variant (more or less accurate) list for one rare disease, so I will never know everything, but I will not be ignorant of what I face. Nor will my wife. oldkarl