← Return to How did you cope with the side effects tapering off prednisone?
DiscussionHow did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 26 4:21pm | Replies (187)Comment receiving replies
Replies to "Having great difficulty with this taper. Went down 5 mg. on Feb. 23 which was not..."
Oh my gosh what a difficult time. I don't know where to begin. First off, you shouldn't drop by more than 10% when you're below 10mgs. And below 5 you must be very careful and give your adrenals a chance to wake up. You should be safe to increase by 5 mgs. for a week to ten days and then drop to where you were last comfortable and wait there until you stabilize. Slow and easy does it.
Oh Deb what a journey this is. It is so difficult to find a balance as our body does not always follow conventional protocols for weaning. I’m sorry I don’t remember her name but a very informed member of this group said “ your body determines you’re weaning process“
(She used better words than I just did!) even at 5 mg when I dropped very conservatively and managed to get down to 3 mg over four months, my body Gave me a reality check and Wham ! I thought my whole life was falling apart. I will be honest and admit that my ego gets in the way and overrides the messages my body gives me sometimes. I recognize that prednisone is not kind to our bodies but there is a point where quality of life comes out on top. Please let us know how you are doing 💞