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@mahenoor108

Hello, @artscaping thank you so much for the reply! I have been to over 16 doctors in the past 2 years
Some say I have fibromyalgia some say we don’t know what you have some think it’s an autoimmune. I have been on different medications of fibro but they don’t help. I have tried swimming, yoga everything I have been recommended, changed my diet but I’m still in pain. Yes sometimes the pain becomes less but most of the time the pain is at a 7. I give time to my son as I don’t want to neglect him and let my illness win. My only complain with the doctors is that why don’t they test me for everything possible which could be causing these symptoms. I have started to get bald patches on my scalp with horrible dermatitis it’s been 1 year now and it’s not going away.
My main problem is pain in my thighs, upper arms, neck, shoulders and my face- cheeks.
I don’t know what it is I have and how I will ever get diagnosed properly.

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Replies to "Hello, @artscaping thank you so much for the reply! I have been to over 16 doctors..."

Hello, @mahenoor108, I'm Rachel, it's nice to meet you. I'm thankful that Chris @artscaping brought your post to my attention. She is certainly right, you mirror a very similar journey to mine. Reading your posts make me sad because I understand your confusion, frustration and anguish, and am sorry you are dealing with it all, especially having a small child.

Being faced with the fear of not knowing why our bodies act out with symptoms that we cant explain, exacerbates more symptoms, so on and so forth. You are a perfect example of how this cyclone happens and affects your entire life, it's called the cycle of pain. My cycle of pain was caused by Central Sensitization Syndrome (CSS) which is an upregulation of the central nervous system and peripheral sensory input. This video will explain more:


Will you please let me know if this video resonates with your journey? Does any of it make sense to you and your situation?

Why do you think your doctors won't test you for everything possible? What reason have they given you for not pursuing more testing? Have you had full blood panels drawn? Do you exhibit signs of any autoimmune diseases that match up to your widespread symptoms?

I went down this same path and believe me, I wanted answers, I wanted to find cause for all of my snowballing symptoms, make sense of it and fix it, but that took time. What are your next steps in being your own advocate? Do you have a support system?

I am so sorry you are going through this rough time. I do not understand myself why doctors say different things, almost always. I think going to Mayo Clinic, Cleveland Clinc or John Hopkins may be a must.

I sympathize with the dilemma but suspect that doctors can't just test for everything. Aside from insurance companies unlikely to reimburse for that, thus the expense to you likely, but there is some logic in ruling out consecutive most-likely diagnoses as being good medicine. And doctors are trained that way, to consecutively rule out most likely conditions. Then there's the issue of specialists, many of whom have a very narrow focus so cannot easily back off and take a different broader perspective. Then there are some doctors whom even other doctors consider brilliant diagnosticians. It's as if they just see symptoms and the related human body from a different perspective entirely. I learned of one once by asking two pharmacists which doctors they see customers improving after a long decline and changing of doctors. It's hard to have to search for the answers at a time when the effort is another problem. Here's hoping that something falls into place, makes sense and is easily treatable.

I am sorry to hear your frustration with doctors.I think most of us with chronic pain go through the same long process of getting the proper diagnosis.In my seventy two years I have had many doctors that really disappointed me in their indifference and a few that were excellent.Right now I am in the indifference category LOL , but I have my first appointment coming up with Physiatry and hopefully some answers.Don’t give up, I have become discouraged by doctors too many times which only made me depressed.Then I have to pick myself up and pick up the phone and Google some doctor and start all over again until I have answers. I know just like you know that something has gone terribly wrong.