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Laurell (@laurell410)

Any NET patients from NYC

Neuroendocrine Tumors (NETs) | Last Active: Feb 15 10:41pm | Replies (24)

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Hello @laurell410, I'd like to add my welcome to you as you have joined the NETs discussion on Mayo Clinic Connect. Those of us with this rare form of cancer find support and encouragement by sharing together our experiences. I have had three surgeries for NETs in the duodenal bulb. The lesion was found incidentally when an upper endoscopy was done. I had no symptoms.

I see that you had a biopsy on the 25th. Have the results been posted yet?

It would be interesting to know what symptoms led to your diagnosis of a NET in your pancreas. Were you have digestive tract problems or low blood sugar?

I look forward to getting to know you. Will you continue to share?

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Replies to "Hello @laurell410, I'd like to add my welcome to you as you have joined the NETs..."

Sorry for the delay in responding but I had hernia repair surgery and still have nausea, Vomiting and very loose oily pencil like stool. The liver biopsy showed well defferentiated , intermediate category 18 and stage 4. As it has metastasis from pancreas to the liver

I just realized that I didn't respond to you but some days I am fatigue and severe diarrhea . The liver biopsy determined intermediate category at 18. 1 tumour on pancreas and 3 on the liver. Prior to March 2022 I was diagnosed with gastritis now we know that it was NETs. The hematologist order labs every 6mths due to anemia. The labs showed declining platelets. Shd ordered an ultrasound and it showed 3 lesions on my liver. She ordered an MRI which showed the tumors on the pancreas and liver. I currently receive a monthly injection of octreotide and the last scan that I had in April showed that the tumors are stable no growth or shrinkage. June 10th I will have a MRI and depending on what is found will determine if I will start chemo