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@jabrown0407

I am not on an oral prednisone dosage. I do see my PCP monthly and we run CRP, Sed Rate, CBC and Comprehensive Metabolic Panel each month at a minimum. I have had anemia and so we watch for that because no cause was found plus a couple of other misbehaving blood factors, my Sed Rate and CRP can run from normal to around 125 on any given month. They seem to be holding hands because the numbers are often close to each other. Also I write my PCP a note whenever I visit another doctor so she has my perspective as well as the letter to her from my specialist.

I visit my Rheumatologist for steroid injections and other pain management needs on an as needed basis. I also see a few other specialist like Endocrinologist - initially my thyroid numbers ran off the rails; a Gastroenterologist for IBS; Cariologist for both tachycardia and bradycardia (she shakes her head every time I see her), initially I had additional heart problems. Most of these problems started when PMR started three years ago, it is exhausting but we are able to keep me going forward.

Not sure what insurance coverage you have. I have Medcare plus a Supplemental and I only pay the deductible, no copay with my policy. Once the deductible is paid I don't pay anything else for my doctor visits. Please call your insurance company and discuss the costs now rather than deciding it will cost too much and not visit as needed. You might be pleasantly surprised. My drugs I have to shop and some of them I have started purchasing from Canada because I require brand names on a couple of them and US based coverage is lousy on brand name drugs.

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Replies to "I am not on an oral prednisone dosage. I do see my PCP monthly and we..."

Hi @jabrown0407, in reading your post, I noticed that you have anemia. This may be of interest to you: "Normocytic, normochromic anemia and thrombocytosis occur in approximately 50% of pateients with These disorders [ PMR and GCA] and are excellent guides to the state of inflammation." Source - Cecil and Goldman's Textbook of Medicine. I had anemia, but it resolved when I started taking prednisone.