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Neuropathy: Numbness only, no pain

Neuropathy | Last Active: 1 day ago | Replies (508)

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@kwfinnie

I have not had a diagnosis of PN but with all my other Autoimmune joiners, it seems likely. My PCP agrees. I have had neurological studies on my degree of numbness. I do not know about the supplements or any other thing I might do to lessen my numbness and therefore have less impact on my balance. Should I be diagnosed? It is very hard to find a neurologist. The last one able to see me diagnosed me with Charco Marie Tooth Disease which other doctors did not agree with. I am 74 have Medicare and AARP and the ability to supplement the payments. Am I able to get an appointment at Mayo? Any other suggestions?

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Replies to "I have not had a diagnosis of PN but with all my other Autoimmune joiners, it..."

@kwfinnie - Should I be diagnosed by seeing a neurologist is a tough question for me and one I think you have to make for yourself based on your other symptoms and how the numbness is progressing. I put it off for over 20 years because I just had the numbness which was in the toes. It gradually progressed to the rest of the foot and then started up the legs to just below the knee. I discussed the numbness with my Mayo primary care doctor at the beginning of the symptoms in the toes and was told they can do some tests to determine if I have nerve damage. My next logical to me question for the doc was if it is nerve damage what is the treatment - no answer then and when I finally decided I needed a diagnosis I got the referral to a neurologist. Then was totally bummed out after being diagnosed with idiopathic small fiber peripheral neuropathy and was told the same thing by the neurologist - there is no treatment for numbness. Fast forward to 2016 and looking for support and information I found Mayo Clinic Connect which got me started doing my own research and learning as much as I can about my neuropathy.

I guess if I was in your shoes I would still want to know for sure about what is causing the neuropathy and if there are any treatments that might help. My suggestion would be to learn as much as you can about your symptoms so that hopefully you will find a treatment that helps reduce or eliminate the symptoms. My two favorite learning sites:
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
-- Neuropathy Commons: https://neuropathycommons.org/