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Hypermobile Ehlers Danlos Care Team at Mayo Clinic?

Visiting Mayo Clinic | Last Active: Jun 16, 2022 | Replies (9)
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@kellyut

Does the Mayo Clinic in Arizona treat Ehlers Danlos Syndrome and it's comorbidities? I am awaiting genetic testing for it. I have three doctors who think I have the hypermobile version and the possibility of the vascular version because of my family history. I am looking for a care team and saw that Mayo has care teams for EDS, but it didn't say which of it's 3 locations offered it.

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Replies to "Does the Mayo Clinic in Arizona treat Ehlers Danlos Syndrome and it's comorbidities? I am awaiting..."
Colleen Young, Connect Director | @colleenyoung | Mar 29, 2022

Hi Kelly and welcome.
Yes, Dr. Dhamija is a geneticist in AZ and she sees EDS patients. See her bio here. https://www.mayoclinic.org/biographies/dhamija-radhika-m-b-b-s/bio-20305639.
The comprehensive EDS Clinic is located at Mayo Clinic in Jacksonville, FL.

@katemschultz posted this informative message when she was preparing for her first EDS visit to Mayo in Rochester
– What to expect at Mayo Clinic, Rochester https://connect.mayoclinic.org/discussion/what-to-expect-at-rochester

@jthigpen writes about their experience at the EDS Clinic at Mayo Clinic in Florida here: https://connect.mayoclinic.org/comment/320392/

Whether you seek care at Mayo Clinic in Arizona, Florida or Minnesota, you will have the advantage of multidisciplinary providers working together. They have can draw on the expertise of their colleagues, thus your team has access to more than 4,700 Mayo Clinic physicians and scientists on three campuses. If there's a question, alternate ideas and emerging research are just a phone call — or hallway — away.

I can see why you might prefer the Arizona campus given that you have accommodation and family support there. What questions might you have Kelly?

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