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@markie59

Unfortunately, you are not an outlier. My SFN started in my left foot and progressed up my legs (left more than right) and then to shoulders, back, neck, fact etc. Now my digestive system is being impacted -- (probably some gastroparesis) along with gastro reflux and nausea. My blood pressure and heart rate are also impacted. Unfortunately, this is a common trajectory. And, I don't know what helps.

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Replies to "Unfortunately, you are not an outlier. My SFN started in my left foot and progressed up..."

Hello @markie59, Welcome to Connect. You are right about not being alone on this neuropathy journey. I think we all have been searching for answers at one time or another. I have idiopathic small fiber PN but fortunately just numbness and no pain. I posted my story in another discussion here - https://connect.mayoclinic.org/comment/310341/

The Foundation for Peripheral Neuropathy has a lot of good information on neuropathy if you haven't already seen it - https://www.foundationforpn.org/

Have you made any lifestyle changes or tried any treatments to see if they would help your symptoms?

When I read your post, I see myself. I have exactly the same issues along with a neugenic bladder to boot. I am trying very hard to find some help. The pain can be unbearable at times. So tired of feeling poorly evey dya