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@johnbishop

@abbeyc, You will notice that we changed the title of your discussion to describe your question and hopefully bring more members with experience into the discussion. My experience has been an inital meeting with a rheumatologist who diagnosed PMR and prescribed 20 mg prednisone along with some instructions on how and when to start the tapering process. I only had labs on a yearly basis with my primary care doctor.

I was given instructions of things to watch for and call them immediately if I had pain or tenderness in the scalp or temple areas. He also told me to listen to my body when I was tapering and to keep a daily pain log from 1 to 10 along with the dosage of prednisone I took for the day. If I remember correctly I initially tapered down by 5 mg after 1 or 2 months then lowered the amount I tapered depending on how I felt in the morning when I first got up.

@tsc, @traynor4, @jmcc , @kmeikle1, @virginiaj and others may also have some thoughts or suggestions to share with you.

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Replies to "@abbeyc, You will notice that we changed the title of your discussion to describe your question..."

3rd bout of PMR. I’m 2 1/2 years from diagnosis, decreasing from 3 mg prednisone to 2, very slowly. I saw rheumatologist monthly at first with labs each time. Currently, see every 3 months, usually virtually. Labs are every 6 months now unless I have symptoms. I have Medicare plus supplement and pay no additional charge for visits or labs. I had a bit of a hassle with my Part D drug plan which only wanted to give me one month worth of prednisone which almost caused a real problem when I had to up the dose one month. My rheumatologist prescribed 360 I-mg pills that I could use to taper for awhile. The Part D plan didn’t want to approve it, but I got in a 3-way call with Part-D rep and pharmacist and succeeded in approval. Prednisone is a very cheap drug compared to others and copay on 360 tablets was not much. My rheumatologist trusts me to work out my own tapering schedule because I am doing it for the 3rd time.