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DiscussionHow did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 26 4:21pm | Replies (187)Comment receiving replies
Replies to "I too can relate. Tapering off very conservatively (1 month 1/2 mg decrease) had increased pain..."
In April started 20 ml steroid. It was wonderful. Started tapering to 17.5 then 15. Pain came back and doctor said go back up to 20. Now 20 doesn't seem to have same effect as it did before. Profound weakness and unsteady in walking. Can't see doctor till August. About ready to give up.
Having great difficulty with this taper. Went down 5 mg. on Feb. 23 which was not bad at all. Went down 2.5 mg on March 21. Having a really hard time. Mood swings are awful. I don't even like myself. So nasty sometimes. Other times ok. Energy is gone down the tubes. A lot of diarrhea and I've been trying to determine what I'm eating that's causing it, but I think it's the decrease in Prednisone. Neck aching in the mornings again. Headaches in the afternoons and of course the sausage finger is acting up. Thinking of going back up to 15 mg. to see if it's the weaning and then will try again in a couple of weeks with a smaller taper. Is this normal and is 2.5 mg too much of a taper. Seems as though it is, but maybe I have to try it for longer than a week. I can handle the extra pain, but just hoping it does not worsen or leave me vulnerable for other things. Brain fog too, like forgetting what I just did. It's very irritating and I find myself angry. Allergies seems to be ramping up earlier than normal. Ears popping, eyes itching and a little red. Runny nose. This is not a complaint, but rather a quest for knowledge as I can rarely get hold of my neurologist. Thanks for any info. ~ Deb