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Has anyone else been diagnosed with an endolymphatic sac tumor?

Brain Tumor | Last Active: Mar 16, 2023 | Replies (28)
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@kfox7818

Hi @scottjg984. I believe you are asking about having an endolymphatic sac tumor removed. I have had surgery on this 5 times. I just had my 5th surgery last week. I am sure I can answer any and all questions. I didn’t think anyone else had this tumor bc there are so little reports on it. I am 41 yrs old now, first survey was at 36

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Replies to "Hi @scottjg984. I believe you are asking about having an endolymphatic sac tumor removed. I have..."
glanv3105 | @glanv3105 | May 8, 2022

Hi @kfox7818 yeah I was in for my secondary MRI scan my balance is already damaged and Im spending too much time stressing worrying about it I don't know what it all means will I be permanently disabled or worse my symptoms now are hearing loss tinitus balance I had asked about surgery and he said he could remove it by my other side will just end up compensating

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